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Dementia in Australia:
Clinical recommendations post-diagnosis
You’ve been recently diagnosed with dementia, now what? AFTDA board members Julane Bowen, Olivier Piguet, and Mirelle D’Mello collaborated with The University of Sydney FRONTIER FTD Research Clinic to provide 10 key guidelines for General Practitioners to implement post-diagnosis. Carers may find this article beneficial and may find it helpful to share with your medical practitioner.
Dementia Support Links
- Carer Gateway Emergency Respite : https://www.carergateway.gov.au/ Mon – Fri, 8am – 6pm
- Dementia Australia: https://www.dementia.org.au/
- Dementia Support Australia: https://www.dementia.com.au/
- The American Frontotemporal Dementia Association: https://www.theaftd.org/
- Rare Dementia Support UK: https://www.raredementiasupport.org/
- Australian Dementia Network: https://www.australiandementianetwork.org.au/
- The University of California Memory & Ageing Centre: https://memory.ucsf.edu/services/memory-and-aging-center-clinic
- Alzheimer’s Disease International: https://www.alzint.org/
- Alzheimer’s Association: https://www.alz.org/global
- Dementia Alliance International: https://dementiaallianceinternational.org
- Forward with Dementia: https://forwardwithdementia.au/
- Dementia Training Australia: https://dta.com.au/
- National Disability Insurance Scheme (NDIS): https://www.ndis.gov.au/
- Eligibility: https://www.ndis.gov.au/applying-access-ndis/am-i-eligible
- Application process: https://www.ndis.gov.au/applying-access-ndis/how-apply
- Aged Care Package: https://www.myagedcare.gov.au/
- Eligibility: https://www.myagedcare.gov.au/am-i-eligible
- Application process: https://www.myagedcare.gov.au/assessment
- Disability Support Pension: https://www.servicesaustralia.gov.au/disability-support-pension
- Carer Allowance: https://www.servicesaustralia.gov.au/carer-allowance
Dementia Resources Links
- Dementia Training Australia:
- The University of Tasmania free ‘Understanding Dementia’ course:
- Eastern Cognitive Disorders Clinic: https://ecdc.org.au/ftd-toolkit
- FTD Talk: https://www.ftdtalk.org/
- FTD Disorders Registry: https://ftdregistry.org/
- The Australian Aphasia Association: https://aphasia.org.au/
- The Australian Dementia Network: https://www.australiandementianetwork.org.au/
- Dementia Australia counselling: https://www.dementia.org.au/get-support/counselling
- Carer Gateway Australia: https://www.carergateway.gov.au/
- Carers Australia: https://www.carersaustralia.com.au/
- Dementia Support Australia: https://www.dementia.com.au/
- Older Persons Advocacy Network: https://opan.org.au/
- Palliative Care Advice Service: https://www.pcas.org.au/
- National Continence Helpline: https://www.continence.org.au/
- Nursing Home Guide Australia: https://www.agedcareguide.com.au/
- Disability Support Guide: https://www.disabilitysupportguide.com.au/
- Enduring Power of Attorney: https://info.australia.gov.au/information-and-services/family-and-community/wills-and-powers-of-attorney/powers-of-attorney
- Wills: https://info.australia.gov.au/information-and-services/family-and-community/wills-and-powers-of-attorney/wills
- Advanced Care Directive: https://www.health.gov.au/topics/palliative-care/planning-your-palliative-care/advance-care-directive
- Enduring Guardianship in NSW: https://www.tag.nsw.gov.au/forms/enduring-guardian-forms
- Enduring Guardianship in VIC: https://www.vcat.vic.gov.au/case-types/guardians-and-administrators
- Enduring Guardianship in WA: https://www.sat.justice.wa.gov.au/G/guardianship_and_administration.aspx
- Enduring Guardianship in QLD: https://www.qcat.qld.gov.au/matter-types/guardianship-for-adults-matters/application-process
- Enduring Guardianship in TAS: https://www.publicguardian.tas.gov.au/planning-ahead/enduring-guardianship
- Enduring Guardianship in NT: https://ntcat.nt.gov.au/getting-started/forms#
- StepUp for Dementia: http://www.stepupfordementiaresearch.org.au/
- Clinical trials: https://www.clinicaltrials.gov/
- Australian New Zealand Clinical Trials Registry https://www.anzctr.org.au/
- FTD Disorders Registry: https://ftdregistry.org/